Friday, April 29, 2011

Gluten Free Cheese Puffs

This recipe was passed on to my daughter from her classmate who is a Celiac. Her whole family of 5, except for one child, are Celiacs. This has been a regular staple in their household for a few years now. The classmate often brings these in her lunch too, and makes tiny little sandwiches with meats and cheeses she brings. They almost remind me of the biscuits that Red Lobster restaurants serve. They are most definitely satisfying!


Brazilian Cheese Puffs (Pao de Queijo)


Ingredients
    • 2 cups sweet manioc starch or 2 cups sour manioc starch (use your favorite gluten free flour mix- ours contains a combination of potato flour, rice flour, tapioca flour, etc)
    • 1 cup milk
    • 1/2 cup margarine or butter
    • 1 teaspoon salt
    • 1 1/2 cups grated parmesan cheese, or 1cup of mozzarella or cheddar cheese
    • 2 eggs

Directions

  1. Preheat oven to 400 degrees F.
  2. Bring the milk, salt, and margarine to a boil.
  3. Remove from heat.
  4. Slowly add manioc starch, stirring constantly until thoroughly mixed.
  5. Add the cheese and eggs.
  6. Knead until smooth.
  7. Form into balls approximately 2-inches in diameter and place on a greased baking sheet.
  8. Sprinkle with Parmesan cheese.
  9. Bake until golden brown. (they don't take very long, so keep an eye on them) 
  10. Eat while hot.
  11. Enjoy!
Makes 20 cheese puffs.

Thursday, April 28, 2011

Not Labelled Gluten Free?...It May Still Be Edible

OK, before you get excited...I Am Not telling you to break your gluten free diet. No, that is a big no no in my books. However, in the grand scheme of things labels have not kept up to the times. So this is where you need to read your labels and be versed in the language of "glutenology". You also need to get in the habit of reading the label each time you buy a product- sometimes ingredients change, so be vigilant. Also, depending on what country you live in, ingredients may differ slightly. Read the label every time! But to save you some of the effort of wondering exactly you may possibly consider that is not labelled gluten free, here is a list:

Corn Pops Cereal*
Captain Crunch Cereal*
Original M&M's
Peanut M&M's
Peanut Butter M&M's
Dark Chocolate M&M's
Skittles (all flavors- so far)
Lays Potato Chips (plain, and some other flavors)
Ruffles Potato Chips (plain, and some other flavors)
Carnation Hot Chocolate (mini marshmallow and Rolo too)
Maynards Candy
Miracle Whip Salad Dressing
Knorr Ready to Serve Soups (Yellow, Red, Orange, & Green)
V8 Ready to Serve Soups (in carton)
Areo Chocolate Bar
O'Henry Bar
Reeses Pieces
Jelly Belly jelly beans
Cadbury Mini Eggs
VH Soya Sauce

*Note: Contains oat flour. Do not consume if you cannot tolerate oats. My daughter is able to eat oats, is a fairly sensitive Celiac, and is able to eat both the above listed cereals. If you do not feel confident that you may eat this then avoid.
There is more...but I will update soon. I have to pester my daughter to list more, since she is the Celiac and tends to have a better memory than me. Until then, make sure you read your labels before you dive into anything on the above list.


Wednesday, April 27, 2011

Raspberry Thumbprint Cookies

This is a recipe that my mother emailed me a few weeks ago. Delicious! And easy to make!!

Hi.

Here is the recipe I talked to you about. Very tasty!!
I am sure you will have a hard time keeping these around for long.

Hugs,
Mom  XX00

 
RASPBERRY THUMBPRINT COOKIES
1/2 cup butter, softened
1/4 c. brown sugar
1/4 c. granulated sugar
1/2 tsp. salt
1 tsp. vanilla extract
1 1/2 c. sifted flour (use your prefered gf flour or gf flour mix-
rice flour would work well)
2 tbsp. milk
1/4 c.  miniature semi-sweet chocolate chips (or pulse regular chips in a food processor)
Raspberry preserves (seedless is better)

Preheat oven to 375 degrees. In medium mixing bowl, cream
butter, sugar, salt, and vanilla together until fluffy.
Blend in flour and milk, stir in chocolate chips. Shape dough
into 1 inch balls and place on cookie sheet. Make small
indentation with thumb in top of each ball. Use teaspoon
to place small amount of preserves in each.
Bake 10-12 minutes.

I don't remember where my mother had said she got this recipe from- a magazine I think...maybe Southern Living...but kudos to whomever created this delight.

Sunday, April 24, 2011

What is celiac disease? - Prevention - Canadian Living

  
Celiac Disease: When gluten containing grains
cause the body to launch attack on itself,
leaving the individual with
nutritional deficiencies
and other health issues in its wake.  

Having gotten together with some family yesterday for Easter, the topic of Celiac disease came up. My daughter is the only known Celiac in the family and questions regarding her diet naturally became a topic of discussion. Then it was asked what the various symptoms were...and my cousin piped up and said- "Maybe that's what I have." So for you or any one of your family or friends that are looking for a good article about what Celiac Disease is all about...here it is: What is celiac disease? - Prevention - Canadian Living 

Wheat, Barley, Rye are Toxic to a Celiac's health.


Thursday, April 21, 2011

To cheat or not to cheat?... That is the GF Question


Cheating on your GF diet?...is it really OK?
Whether newly diagnosed or a veteran Celiac, cheating on the gluten free diet has probably crossed your mind. Likely you consider how you will feel afterwards, before you decide to indulge or not.
My daughter has wished on a number of occasions that she could cheat even just once in a while. However her extreme reaction to gluten exposure is enough of a deterrent for her. She is particularly sensitive to gluten, with a single crumb causing more than enough discomfort that she is now gluten phobic (much like germaphobe fears). For that reason I do not worry about her cheating.
However, I have met Celiacs who believe that cheating once in a while is OK- that the indulgence is worth the discomfort they will experience later. In this viewpoint, the only reason to be on a gluten free diet is to avoid intestinal discomfort (and need I say, just feeling blah too). Really? Is that what being a Celiac is?...going gluten free because it upsets your tummy?
Celiac Disease is an autoimmune condition with no cure, but can be controlled through diet. A gluten free diet. Autoimmune refers to a condition in which an individual's immune system launches an attack on the body because the area under attack is seen as foreign. Much like a virus is a foreign body, in the case of autoimmunity in Celiac Disease the villi of the small intestine are seen as a foreign body when exposed to gluten. Villi are a hair like carpet that cover the interior walls of the small intestine. Instead of protecting the body, the immune system of a celiac attacks these villi and causes damage. This damage can take a significant time to heal- possibly taking up to a year to completely feel symptoms subside once going gluten free after diagnosis. The villi are responsible for absorbing the nutrients from food we consume- so are very important to our overall health.
Blah blah blah...so what, you may say- "I"m gluten free most of the time." While this is better than your previous diet of eating wheat and other problematic grains, this cheating still causes damage. Firstly and most obvious, this damage affects your absorption of vital nutrients to important to health. So depending on how often you cheat, the risk for osteoporosis for example will increase. Celiacs are more at risk for this condition because they are not absorbing calcium as well; and if one considers that many Celiacs go undiagnosed for 10 years or more, that is a huge void in calcium intake. Bones are not rebuilt overnight. So now that you are gluten free, imagine how long it will take your body to play catch up... Cheating just defeats and sets back your optimum bone health. There are also many other nutritionally dependant celiac conditions to consider too, osteoporosis is only one of many.
OK OK you may say...but...  No buts! There is more yet to consider! Having an autoimmune condition is no matter to be taken lightly. Having an autoimmune condition automatically increases your risk of having other autoimmune conditions appear. Celiac Disease in my opinion is the the warm fuzzy one of the bunch. Ever heard of Type1 Diabtetes or Thyroiditis? How about Rheumatoid Arthritis? If those sound boring, how about Systemic Lupus Erythematosus, Scleroderma, or Sjo¨gren’s syndrome? Then there is Autoimmune Liver Disease or Addison's Disease. This next one is not too bad though if you are into wigs...Alopecia Areata (hair loss in patches). All of these conditions listed are known to be potential partners in crime with Celiac Disease, especially if you are undiagnosed...or cheating. It is thought that part of the relation (other than genetics) of Celiac Disease to these autoimmune disorders, is that a celiac ingesting gluten then also causes the gut or small intestine to leak, allowing the antibodies attacking the villi to cross into other areas of the body and wreak havoc on other systems. So do yourself a favor- lower your risk and don't cheat. Ever!
At this point I am feeling a little like the Dr. Suess Cat in the Hat, telling the children..."that is not all!" But alas there is more you face if you do not keep strictly gluten free. Want to have children?...yes infertility possibly awaits if you cheat. So does cancer- but who wants to live a long and productive life of living to your fullest potential?!
If you're young at heart and body still, not having reached puberty quite yet, I'm sure you're looking forward to your growth spurt. Well if height doesn't bother you, then welcome to potentially remaining the height you currently are. My daughter has had to deal with this reality, since her disease was not detected until she was too far along into puberty. It bothered her for a long time- but if she was a boy, I'm sure she would be still struggling with shorter stature.
If you still need more reasons of why you shouldn't cheat, I have more. Some individuals more than others struggle with depression. Celiac disease can cause depression as you may or may not know. So protect your mental health and enjoyment of life by being proactive- just refuse to cheat.
Lastly, if the above aren't scary enough...Refractory Disease. This is one that I was not familiar with until I started researching to write this post. This is gem is essentially Celiac Disease that doesn't respond to a gluten free diet. This can be a result of years of going undiagnosed and having the small intestines so ravaged that their ability to heal is undermined. The other is a result of cheating. To treat, steroids are often used as well as immune suppressants. Some individuals however, still do not respond to this treatment and must be "fed" intravenously. And you thought your current restricted gluten free diet was bad!!!http://www.medicinenet.com/celiac_disease/page7.htm
Sadly, though I have mentioned most of the demons that await if you don't remain gluten free, there are a few more. These again are related to malabsorption and the havoc that being deficient can cause to one's health. Some of these issues of deficiencies I will save for a later post, but I hope you get the point. Cheating is not worth the brief indulgence when it comes to what the risks involved are. Adapting is hard when going gluten free, mostly psychologically speaking. But if you continue to give in to your gluten laden desires, you are 1) sabotaging yourself into continuing the cheating cycle, and 2) risking your overall health and life potentially. So next time you see that donut calling out to you, ask yourself..."Is it worth my life?"




Additional Reading:
http://www.thorne.com/altmedrev/.fulltext/10/3/172.pdf
http://customchoicecereal.com/blog/cheating-on-a-gluten-free-diet/ 
http://www.direct-ms.org/pdf/LeakyGutMS/Fasano%20Celiac%20other%20autoimmune%20disease.pdf

Tuesday, April 19, 2011

When Celiac Disease Jumped on My Daughter

Having been a mother of a Celiac teen now for a little over two years, I have learned that Celiac Disease presents itself in many different ways. Many Celiac's that I have talked to since my daughter's diagnosis have often told me of feeling fatigued and ill with mystery conditions, aches and pains- just feeling sick all the time for years. I myself had been tested for Celiac Disease, when I began having neurological symptoms a few years back, since this master of disguise disease can mimic even Multiple Sclerosis. (I did end up having MS though, and not Celiac Disease.)

When it came to my daughter, she had been symptom free until the whirlwind that ended with a diagnosis of Celiac Disease. As a young child she was a 'good eater', healthy, active, and rarely had need of a doctor. All this changed in October of 2008, at age 13. She and her brother both ended up at home with a case of strep throat. Both were administered antibiotics, with my daughter's dosage particularly high since we were told she had a severe case of strep- so bad that she was not to go out in public until her antibiotics had been finished in 10days. In under 10 days, my son had bounced back to his normal self and had gone back to school.

My daughter on the other hand was still sick. She had finished her antibiotics, her glands were gone, and still felt awful. So I took her back to the doctor. They tested for mono. Tests came back negative. Next it was thought they may have given her too high of a dose of antibiotics and killed off her good intestinal flora, resulting in bad bacteria taking over. This too was not the case, nor were parasites which she was also tested for. There was a myriad more of blood tests done, making her feel like a blood donor versus being on track to find a solution to her illness. Then finally there was a mention that they were going to include Celiac Disease in the next battery of tests. To everyone's surprise her blood tests came back positive for Celiac Disease. There was no family member who had ever been diagnosed with Celiac disease before my daughter.

The initial doctor we had been seeing recommended immediately going on a gluten free diet. So we did. My daughter began to feel a bit better within a few days. As a follow up, I booked an appointment with her usual family doctor which took place two weeks later. It was recommended that we see a Pediatric Gastroenterologist, since her symptoms were not considered "classic" indicators of Celiac Disease. My daughter's maternal great grandmother (and her brother) had suffered from Crohn's Disease, so that was a possible consideration. I was also told that it is possible to have positive blood test results for Celiac Disease, but still have negative biopsy results-and vice versa. Therefore, biopsy is the only clear determination of Celiac Disease.

A couple more weeks later, we saw the Gastroenterologist. He was especially skeptical of the Celiac diagnosis, and said that my daughter's symptoms were more of a fit with Crohn's since her stomach pain would often wake her in the middle of the night, and even had her occasionally doubled over in pain. Her pain he said was too acute for Celiac's. He did not rule out her being a Celiac though, and told her she had to eat the equivalent of two slices of bread everyday until her biopsy which was scheduled a month later. In the meantime, they sent her for more blood work, x-rays, and a barium swallow.

Having to eat her daily bread quota (though crucial for diagnosis prior to biopsy), my daughter was now even more miserable than when she just didn't get better from strep. She reacted even more strongly to gluten now than she had previously. Occasionally she even vomited, had frequent headaches, and just felt like she had a bad flu. To make the situation even harder on my daughter, she had been too ill to attend school since mid October. The biopsy was scheduled for mid December, after which she could then go gluten free once again.

When the results came in, my daughter was positive for Celiac Disease and not Crohn's. She was devastated- but I think she would have been upset with anything that told her that she was ill with a condition. Going gluten free slowly got her on the road to recovery. It took time though. She missed more school in January, and was doing occasional days in February. She was so exhausted and still felt flu like for several weeks after going on the gluten free diet. She had missed months of horseback riding lessons too- her favorite thing in the world- so her exaggerating her recovery was out of the question. You could see it in her face that she still was not well.

In June we saw the Gastroenterologist again for a check up. (By this time, my daughter had felt much better, though still struggled with fatigue some.) This doctor had said previously, when he gave us the positive biopsy results, that my daughter would likely lose a bit of weight on a gf diet. Not that she needed to- standing at 5ft 3inches tall and a size 2. To the doctor's surprise (and also that of my daughter and I), she had lost 20lbs! I knew she had lost some weight, wearing now a size 1, zero or double zero depending on the clothing brand- but this was astounding for such an already petite girl. She has since gained more weight as she has filled out more over the course of puberty, but she no longer is plagued with her 'mini tummy' that she constantly had prior to being a symptomatic Celiac. Bloating, is something easily overlooked and masked with natural weight gains that occur in puberty.

Though the onset on Celiac Disease was dramatic in my daughter, many Celiac's go years without being diagnosed. Celiac Disease causes damage to the villi of the small intestine whether symptoms are dramatic, vague, or silent- and can lead to other health issues. Luckily my daughter was told that in a year or less, that if another biopsy were to be done that no damage would be found- meaning her risk for other Celiac related conditions would be low because there would be no permanent scarring of the villi. Unfortunately, Celiac Disease did leave it's mark nonetheless on my daughter- she would not grow to her full height. If not caught prior to puberty, Celiac Disease can stunt a child's growth. She is OK with her height now, but it bothered her for some time. The psychological aspect of having to eat gluten free for life was probably the most difficult however, and is still an ongoing struggle at times for her.
I welcome you to comment and share how you or someone you know was diagnosed. For more information related to this topic, please see my previous posts Adapting to a GF Lifestyle and Gathering GF Resources to Live Better.

Sunday, April 17, 2011

Have Celiac, Will Travel

In February of 2010, we took our first real trip as a family since our teen daughter had been diagnosed as a Celiac. She was apprehensive, but I assured her that we'd make sure she didn't starve. We packed various gluten free snack bars (as a back up plan) and boarded the plane bound for Victoria, British Columbia, Canada. Being that it was a short trip over the mountains from Alberta to BC, there was no need to worry about an in flight gluten free friendly meal.

Arriving in Victoria that February, began a culinary adventure for my daughter that was full of pleasant unexpected surprises. The weather on top of it all was superb, with an early spring that had trees and bulbs in bloom. The whole trip was magical and has my teen daughter and preteen son begging to go back.
http://www.hellobc.com/en-CA/RegionsCities/Victoria.htm

The first couple of days we stayed locally in Victoria, soaking in museums and shops. Here my daughter discovered The Old Spaghetti Factory and The Joint.
http://www.victoriaentertainment.ca/business/Old%20Spaghetti%20Factory/326
http://www.eatatthejoint.com/html/
The Old Spaghetti Factory offers a gluten free menu that includes pasta dishes that my daughter was happy to devour. The Joint is a pizzeria that offers a gluten free crust that didn't scream gf in it's taste or texture- it was just good as my daughter put it. We soon became regulars at both restaurants though our stay was short.

Our next leg in our adventure on Vancouver Island was a drive to Botanical Beach. Well worth going! The mini hike from parking lot to the beach is a trek though a temperate coastal rain forest- simply breath taking. Once the beach is reached it is a treasure trove of nature- a new micro ecosystem in each of the tidal pools just awaits discovery... My children were constantly calling out- "Hey, come here- you have to see this!"
http://www.trailpeak.com/trail-Botanical-Beach-Botany-Bay-Loop-Trail-near-Victoria-BC-647
Of course all this discovery works up an appetite. The nearest town, Port Renfrew, is small and quaint, but had my daughter worried about it's ability to feed her a gluten free meal. Because it was off season for tourism, there was only one restaurant open- this heightened her anxiety. The Coastal Kitchen Cafe was it. As soon as I mentioned that our daughter was a Celiac, they offered a dizzying array of choices that they could make for her. They knew all about being a Celiac- were very knowledgeable, and accommodating. When her meal came, my daughter was not disappointed. In fact, all the food was very good! http://www.discoverportrenfrew.com/activities-dining.htm

Next stop, was a ferry trip to Salt Spring Island. I visited this magical place as a child and it did not fail to wow me once again. My family too was counting the days when we could all go back again, by the end of our day trip to Salt Spring. http://saltspringtourism.com/ Though my daughter was by now feeling more confident that she could find gluten free food in remote places, she still had the nagging worry and a gf snack bar ready. We arrived at Fulford Harbor, investigated a bit, and made our way to The Fulford Inn for a bite of lunch. Again, upon the mention of the word Celiac, the staff were more than eager to accommodate my daughter's gf needs. They have a staff member who has Celiac Disease, so they were well versed in gf cooking. After giving her various options to consider, they came back shortly from the kitchen- and offered to make her fries... They had just cleaned the deep fryer that morning, and it had not yet been used. Of course my daughter jumped at the offer of fries, to go along with her pan fried chicken breast. She was pleased, and her meal was delicious.

The important thing to remember, is that though being a Celiac can be stressful when travelling, be prepared for pleasant surprises too. Sometimes even when a restaurant is out of the way, and/or not on any recommended Celiac lists, that they can be surprisingly accommodating and knowledgeable. Do your best to let the destination guide you and not the food. You will discover new places as well as new restaurants that would have remained unnoticed travelling as a Celiac versus being an explorer who is also a Celiac, wherever that may take you.




Note: Here is another resource we used while staying in Victoria. It is how we discovered The Joint. The Celiac Scene is a fabulous resource!http://www.theceliacscene.com/map5-British-Columbia-Victoria-and-Area-Inner-Harbour.html

Thursday, April 14, 2011

Pasta Anyone?...

Gluten free pasta for Celiac's is one food item, like many gf products, that takes some experimenting with. For eating 'fresh' (not baked), Mrs. Leepers Corn Pasta is preferred by my daughter. She likes this gf pasta over others for both it's texture and taste. However, it doesn't tolerate being used as a baked pasta dish. It goes to mush. So just boil it and eat right away with your favorite topping!

Wednesday, April 13, 2011

What's Cooking on Saturday Morning?...Ricotta Pancakes

This is my daughter's favorite recipe as of late. It is a Nigella Lawson creation that she found on an internet search. It is simple too. Though the recipe in it's original version is not gluten free, we simply substitute with our favorite GF flour to replace the all purpose flour. My daughter also uses canola oil instead of nut oil- your choice. The texture is nice and fluffy- and they taste Good. Enjoy!

Ricotta Pancakes

Ingredients

  • 250g ricotta cheese (1 cup)
  • 125ml semi-skimmed milk (1/2 cup)
  • 2 large eggs, separated
  • 100g plain flour (gf remember!- about 3/4 of a cup)
  • 1 teaspoon (gf) baking powder
  • Pinch salt
  • 2 teaspoons groundnut oil (canola works just fine)
To Serve:
  • 250g (1 cup) strawberries, chopped (or other berries of your choice)
  • My daughter loves hers with strawberry jam.

Method

  1. Put the ricotta, milk and egg yolks into a bowl and mix well to combine. Stir in the flour, baking powder and salt and gently whisk to make a smooth batter. Beat the egg whites until they become foamy - this isn't hard work even, whisking by hand, which is all that's needed here - and then fold them into the ricotta mixture.
  2. Heat the oil in a large frying pan and drop in heaped dessertspoons of batter.
  3. Cook the pancakes for about 1 minute until golden and then flip them over and cook for another minute. Keep the cooked pancakes warm, by tenting with foil on a large warmed plate, while you work your way through the batter, and then serve with syrup - if you must - and strawberries.
Serves: Makes about 25.

Gluten Free?!... There's an App for That!

With so many information sources available in this technological age, it can sometimes be overwhelming. Combine that with the anxiousness that can accompany being on a restricted diet, it can go from overwhelming to exhausting. However, gluten free information overload "has an app for that".
Many of us has phones that do more than simply act as a communication device. They entertain, inform, and help with productivity. And now we are in the dawn of the "tablets" that do even more. Both tablets and smart phones have a vast and varied number of applications- gluten free applications included. For this post I will be only referring to those apps that can be used through the iphone or ipad, since I am unfamiliar with other similar devices.
The first app that I added to our gluten free arsenal- Gluten Free Restaurant Cards for iphone (works on ipad too). These "cards" can be handy to have available when at any restaurant. They explain simply the condition of Celiac Disease and it's dietary requirements in the language you need. Very handy if you plan on visiting ethnic restaurants, and there are no "cards" to lose because it is on your iphone or ipad.
Some apps specific for ipad that are great for the kitchen (celiac or otherwise)- Allrecipes.com and Epicurious. Though both are good and provide lots of recipes at your fingertips, I prefer the format of Epicurious. Both though have good feedback for rating each recipe, which is helpful in choosing a recipe that you have never tried before. But don't fret about having to choose between the two- both are free. Another excellent free recipe app is Whole Foods Market Recipes. Again, there are what seems to be hundreds of recipes. You can even further tailor your dietary needs if you needed dairy free on top of gf- each recipe is coded for easy viewing to find the one that suits your needs. Epicurious has the ability to input multiple search parameters, allowing for gluten free, low sodium, kosher recipes to be searched for, or any other combination. Both Whole Foods and Epicurious also have the added benefit of creating a shopping list for the recipe too. Handy!
Though there are many more apps available, those I have mentioned are free and seem to be the most helpful of the free apps, making living gluten free simpler for Celiac's. I have yet to explore those apps that need to be purchased. Though their cost is not great, I have been too occupied with the ones I currently have. I will post on this later when I have explored more of these handy little gf digital tools.

Celiac Awareness- Fighting Against the Fad

It seems that there is more awareness of Celiac Disease these days. Along with this awareness, more people are becoming diagnosed. In turn, there are more companies producing gluten free products and many restaurants are willing to be acomodating. All terrific for someone living with Celiac Disease for years, or those new Celiac's with former mystery medical conditions. BUT...there is a dark beast looming in the shadows. 
Over this past week, I have come across two disturbing articles. In one instance, a prominent chef apparently disregarded requests for gluten free meals- knowingly feeding these patrons gluten. He supposedly stated this himself on his facebook account, saying that he thought that the whole gluten free thing was in people's heads. The second article is unfortunately a proven case. This particular gentleman thought he'd make money by selling bread to Celiac's telling them it was gluten free, when it was in fact NOT! He has been tried, and sentenced to a minimum of 9 years and a maximum of 11 years. While I think his sentence is a little excessive (since often rapists, pedophiles, and murderers get lighter sentencing than this), I believe it is the start to better regulation and accountability in the gluten free industry. 
So why would these individuals be so blatantly deceptive?... For one, though there is more awareness out there than ever before about Celiac Disease, it seems that the necessity of the Celiac gluten free diet has been hijacked by those who are following the latest health craze or diet fad. Don't get me wrong, I am not a health nut hater- I think it just has caused some confusion with needing to be gluten free and wanting to be gluten free. In either instance both parties have the right to eat a gluten free diet, and violating that right is wrong. But it seems that living gluten free by choice has begun to gloss over Celiac Disease- thus you have people out there that begin to believe being a Celiac is nonsense, and/or simply wanting to cash in on the latest health craze (since gf food tends to be expensive). Both of these ways of thinking are dangerous to a Celiac. Being that it is an autoimmune condition rather than an allergy, some may also leap to the conclusion that since a Celiac doesn't react immediately to gluten exposure that they must be one of these health nuts- they can charge more for their "gf" product, or simply be lazy and not go the extra mile to avoid gluten...that no harm will come to the individual ingesting gluten. Not eating gluten free does do damage to a Celiac's health!
So what is a Celiac to do?... Continue to speak out. Clarify. Specify. While I think the message is getting out there about eating a gluten free diet, I think it is important to explain to people what being a Celiac is when the opportunity presents itself. I recently informed a curious Dairy Queen employee and a customer who both asked me more about "what is Celiac Disease exactly?". Word of mouth is a powerful tool, so don't discount your mini campaign. It may also be helpful to encourage Celiac Associations become more involved in the community at large- speaking to restaurants and grocers; informing them, offering tips and/or training rather than solely focusing on the Celiac's themselves. Regulatory bodies may also jump on the band wagon of "correct" Celiac awareness too in the wake of the fraudulent bread conviction. But in the meantime, put your own voice to work. Speak out. Lobby for change where needed. Inform one person at a time.  

http://www.newsobserver.com/2011/04/12/1125084/durham-man-who-sold-fake-gluten.html

Update: April 21st, 2011
Here is an article related to the need to eat gluten free versus that want of eating gluten free. A positive explanation and discussion about the topic. Thought this link would give some balance to the two previous negative ones.

Saturday, April 9, 2011

Cross Contamination Cont...Eating Away from Home

When my daughter was diagnosed as a Celiac, it was a while before she gathered the courage to eat at a restaurant or even a friend's house. She is a particularly sensitive Celiac, so the thought of leaving her meal in someone else's care was scary...at first.
The easiest transition for my daughter was having a meal at a friend's house. Her friends became advocates for her, informing parents of her dietary needs. As an adult however, the only advocate we are likely to have is ourselves. Though you may feel at first that your are imposing on your hosts with your gf needs, don't fret. You can't help that you can't ingest gluten- so why feel guilty?
Any gracious host will be more than understanding and accommodating. Just don't spring it on them when you arrive at the door. Because if you leave your host in the dark, the only one who is going to suffer is you- being stuck with carrot sticks or ingesting gluten. Instead make a courtesy phone call, thanking them for the invitation and explain your gf needs. If they balk at this, then they aren't likely worth your time.
If your host is unsure about what to avoid in the kitchen, offer emailing a list, or direct them to a web listing of what to watch out for. Living Without magazine also has a list of foods to avoid in every issue near the back. In addition, ask the host if they are unsure whether an ingredient used is gf or not that they allow you to read the label. That way you can enjoy your meal in confidence, lacking the nagging worry of how you will feel in the coming hours.
Another tip- serve yourself first, or ask your host to allow you early entry to the kitchen or table. There may be things like bread being served, and crumbs (or serving spoons) can travel to undesired destinations such as your plate. With practice, you and your host will continue to have an open dialogue about avoiding gluten- but be their polite gentle informative guide.
Next stop on the GF Culinary Tasting Tour...Restaurants! Understandably, eating at a restaurant (whether 5 star, fast food or mall food court) can be distressing for a Celiac. There are so many more elements involved- I'm starving, where can I eat right now? Does the chef and staff truly understand what Gluten Free means? Is it a busy restaurant/time where mistakes are more likely to be made?
To get yourself started and back to enjoying eating out, refer initially to your regional celiac association. They will usually have restaurant listings that are gf friendly, and in most cases the staff are well trained in gf awareness. Plan ahead by choosing a restaurant on the list. Then call to see when they tend to be less busy, making a reservation if necessary. When you are seated, ask if a gluten free menu is available- if not, then tell your server that you are a Celiac and ask what they recommend that can be made gluten free. Remember, just because a restaurant is on a gf friendly list doesn't mean it waves your responsibility of informing staff of your needs. Very few restaurants exist that are completely gf.
When you order be very clear that your meal needs to gf, but be polite and make a point of saying thank you. I have found that politeness helps to further keep gluten at bay because your server is more inclined to be more vigilant. Simply being polite, I have had servers catch kitchen errors before the meal even reached the table. However, don't be so polite as to not question your meal when it comes. If it looks suspicious, ask. Send the meal back if needed, requesting a freshly made one.
Here are a few additional things you can do or look out for when out and about and eating gf:
1) Is it deep fried?...I have encountered a few restaurants that recommend items that are deep fried, but do not have a separate fryer for battered foods. This is not gf eating- you cannot cook gluten at a high temp to neutralize it, nor is the gluten going to stay in the oil and not your food. McDonald's is one place that does have a separate fryer for french fries vs. other battered/coated foods.
2) When there is doubt about an ingredient in a meal you would like, avoid and choose something safer, or when possible ask to read the label. I have had many places graciously pull out big jugs to let me read ingredients.
3) Avoid buffets. They are usually not gf, and if there happens to be gf items the likelihood them remaining gf is nil.
4) Avoid hard ice cream and stick to soft serve or frozen yogurt. Hard ice cream is exposed to cones that are not gf. Soft serve ice cream on the other hand comes from a dispenser keeping it gf. (Still ask about ingredients when in doubt though.) Then...ask the server to remove the nozzle on the dispenser and clean it for you- because the nozzle has come into contact with cones and other non gf ingredients. I have visited Dairy Queen on numerous occasions with my daughter, state that she is a Celiac and that ingesting minute amounts of cookie, cones, etc will have her doubled over in pain in an hour. 99% of the servers have be fantastic about cleaning the nozzle. Only one told me to "get over it".
5) Beware of sauces. Ask about ingredients. I have had many servers happily ask the chef on our behalf. When in doubt though, omit or or order a different meal.
6) Ask if your meal can be brought out separately. Some servers like to stack plates on their arm- however this increases your risk of non gf items making their way to your plate.
7) I often stress that my daughter is highly sensitive to gluten, and that croutons cannot be picked off if placed in error- that a single crumb will cause hours of torture. At times I state that she is allergic, though this is a lie- but it seems to get the point across since many are ignorant of what gluten or a Celiac is. And I am descriptive. I tell people anything with bread, cookie, cracker, etc is toxic to my daughter.
8) Ask if it is possible for a special meal that is not on the menu. Sometimes it may be a bowl of fruit, or a lettuce salad with chicken. But understand that it won't always be possible. On a number of occasions, my daughter has been made to feel like a queen- being told they would make her her own special meal.  Once, the chef came out to greet her, telling her he would make anything for her that she wanted, on or off menu- even bread. None of these places were listed on gf recommended restaurant lists, and in fact were in out of the way places. Only one was a four star establishment.
9) Have a back up plan. This means carrying a gf granola bar or other gf snack that can be easily carried with you. This is not ideal, but it prevents you from passing out from hunger in case you cannot locate a place that can be accommodating.
Now what are you waiting for?... Get out there and eat!

Thursday, April 7, 2011

Cross Contamination- Celiac's and "Wheaties" Can Live in Harmony

When my daughter was diagnosed as a Celiac, my initial instinct was to feed the whole family gluten free food. That way of course there was no possible way for her to get dosed with gluten. However, that was somewhat an idealist idea once I saw the cost of eating gluten free. I was astounded how much groceries were costing for just my daughter- and then just multiply that cost by four people...Gulp!
So the next decision was to revamp the kitchen, and the etiquette there within. Sounds simple enough- and alot of it is easy, it just takes practice and training of all family members. Even for the Celiac herself! (My daughter once used the wrong margarine tub...I felt awful for her, but hers was clearly marked with her name. Everyone in the family takes time in adjusting, celiac's included.)
             1)  A place of their own. Set aside part of your pantry for gluten free items. Having a gluten free shelf does a number of things. Firstly, the chances of a non gf product being mistaken for gf is lessened. Secondly, it also establishes boundaries for the Celiac- "this is my food, and unless you ask me I am not going to share". After all the Celiac has limited choices, and if the rest of the family has eaten their gf food what is a Celiac to do? Anxiety and loss of control I found are greatly lessened just by giving my daughter space for her food. I give my daughter her own space in the freezer too.
            2) Double up on appliances. Don't be alarmed- this doesn't need to get expensive!- and it's still cheaper than feeding a family of four completely gf. Start with a second toaster. There are many price ranges and models available that wont break the bank. I did splurge a little however, but it was worth the extra cash. My daughter's toaster came with a rack that can be used to warm breads. Very handy, since most gf breads taste better warm or room temp. (Also, I keep the gf toaster away from the non gf toaster.) Later on, we bought a small waffle iron. This was at a cost of less than $20cdn. And if you want to be more savvy, employ the toaster and waffle iron to work together. Make gf waffles, freeze them, and then pop them in the toaster when ready to use them! And you're saving money by making your own waffles!!
            3) Label!! Grab your sharpie marker or label maker, and ready-set-go! Write the name of the Celiac family member on things that must coexist, or that you need two of  and are identical (like peanut butter). The fridge is a prime place for this. Label the margarine tub, jams, etc. that will be used only by the Celiac or used to make gf family meals. This can also serve as a reminder for family to not taint jam for example by using a spoon and avoiding the poisonous non gf crumbs. It's up to the Celiac to let others use these items that are labelled for them-otherwise, double up. Margarine is one I have always doubled up on, since the risk I find is too great. Butter that I use for cooking though, is always kept gf in our house, as is mayo and mustard- you must figure out what works for you. Which leads into...
            4) Rules. Rules are perhaps the most important tool you will need to utilize in the kitchen. It may take a bit of time for everyone in the household to adjust, but with patience and gentle reminders everyone will pitch in to keep the Celiac's food gf. An example of a simple rule, is to use separate spoons for each pot cooking on the stove when not all items are gf. Or, clean the counter surface prior to preparing a meal that a Celiac will be partaking in. Little changes such as this will keep gluten in it's rightful place.
            5) Wiping surfaces that look suspicious- from counters tops to standing mixers. Don't panic, I'm not suggesting that you disinfect your entire kitchen- I for one don't have that kind of energy, and neither do you I doubt. Just take it as the situation comes. Wipe a counter that looks like it may be dusted in flour or have crumbs before meal preparation. Wipe the standing mixer off prior to using it for mixing gf baking. All this contributes to a healthy kitchen for the Celiac.
            6) Cutting Boards and Spoon Rests. I have on hand 3 plastic cutting boards in my kitchen. Two would be sufficient however. Cutting boards add an extra barrier against cross contamination. Having more than one means you can quickly grab another if needed to prepare non gf items- great for meat vs veggies too. And plastic means that you can throw the cutting board straight into the dishwasher! As for spoon rests, this again helps keep things gf by keeping cooking utensils off the counter. It also serves as a reminder to those in the kitchen to not mix up spoons or spatulas when cooking gf vs non gf. A small plate works just fine too.
            7) Wash your hands. Basic and obvious, but effective. If you made a sandwich that is non gf, and are about to make a gf sandwich...wash your hands. Or make the gf sandwich first.
I hope that these suggestions help guide you on your way to a harmonious "mixed" kitchen. Bon Appetit and To Your Health! More to come on Cross Contamination for my next posting. Until then, please share what you do in the kitchen that keeps cross contamination at bay.

Tuesday, April 5, 2011

Cross Contamination- The Dark Cloud that Follows Every Celiac

As any Celiac knows, or anyone that knows a Celiac, cross contamination is constantly something that needs vigilance. For my daughter, a single gluten laden crumb is enough to cause several hours of intestinal torture. Thankfully as a mother, I have not yet "poisoned" my daughter with gluten. I am careful, and have gotten into a routine of how I go about preparing meals. However, I cannot keep my teen daughter locked up from the world in order for her to avoid gluten. So we plan, and ask questions, and do alot of reading when out and about.
Over the next few blog posts, this will be the focus- how to avoid cross contamination. Like storm clouds brewing in the distance, one can limit the chances of exposure to gluten by being informed with your own GF Weather Report.
I will leave you with this mini tip until my next post...do not share lip balm or gloss with a non celiac- my daughter borrowed mine once. The lip balm was gf, but my lips were not...tainting the balm. She has never forgotten again.

An Interesting Link- Celiac Disease and Multiple Sclerosis

My brilliant doctor dad recently mentioned this new apparent link to me that is found between Celiac Disease and Multiple Sclerosis. Interestingly enough, parents like myself with MS are more likely to have Celiac children(my daughter). Both diseases are Autoimmune conditions, where the immune system attacks the body for not yet understood reasons. With Celiac's it is the small intestine that is attacked when exposed to gluten. Celiac's is not an allergy, as some assume. In the case of MS, it is the myelin sheath in the brain and spinal cord that is attacked by the immune system. Other autoimmune disorders include Crohn's, Lupus, Rheumatoid Arthritis, and many many more that are not listed here.
http://www.medscape.com/viewarticle/738740

Quinoa Good - Bulgar Bad

As a Celiac, going GF can be as simple as making a substitution or two. As spring slowly arrives, it has me thinking of different foods. Bulgar salads have always been a favorite of mine, but with a Celiac in the house that is definitely out of the question. So a substitution is in order! Quinoa!! This little grain may be small, but it is truly mighty. Chock full of protein, fibre, amino acids, iron, and much much more- no wonder it was once considered "the gold of the Incas". http://www.whfoods.com/genpage.php?dbid=142&tname=foodspice In fact NASA is considering it for long manned space flights.
Quinoa in my opinion, also holds up better than bulgar in a salad, never becoming mush, and has an added slight pleasing crunch to it. It can be used as a side dish too instead of your usual other starches. Look for it at your local health food store if your grocery doesn't carry it. Lately, I have been getting it at Costco. It is worth adding to your pantry!!

Monday, April 4, 2011

What's for Dinner?...Easy Honey Mustard Chicken!

Gluten free doesn't need to be complicated! Here is a simple chicken recipe that is sure to please the palate.

Skinless Chicken Breast
Brianna's Dijon Honey Mustard Dressing (or other gf dressing)
Olive Oil

Place chicken breasts in a bowl and pour enough dressing over chicken to coat well. Make sure to coat all sides using your hands or tongs. Let sit for a minimum of 30min. Can place in the fridge covered overnight if desired. To cook, heat approximately a tablespoon of olive oil in a frying pan and add chicken breasts. Cook till deep golden brown on both sides, and chicken feels firm to touch with tongs. Let rest 5minutes, and serve with veggies of your choice. Enjoy!
http://www.briannassaladdressing.com/whatcha-eatin.html

Gathering GF Resources to Live Better

As overwhelming as it is to be newly diagnosed as a Celiac, there are more resources than ever before to draw from- and it is growing! The internet is an invaluable source of information ranging from recipes, to tips and suggestions, as well as medical advice related to your condition. This can compliment your library of information at home, as well as help out in informing your doctor about the various nuances of living with Celiac Disease. Most of you out there likely have a GP/Family doctor, or possibly a Pediatrician for your child- however, the likelihood of your doctor knowing all the various issues that can be associated with being a Celiac is small. There is just too much to know- your doctor is not a walking human encyclopedia of medical knowledge. Case in point- my daughter, after having been on the gf diet for almost a year, was still struggling with significant fatigue. We visited our family doctor countless times, had her tested for deficiencies in iron, etc. We were told that her levels were normal each time. We were then told to follow a strict regimen for sleep- and still she struggled with fatigue. Next, sleep disorders were considered... But all the while I had the nagging feeling that my daughter was deficient in something (since this can be a celiac issue). I read and read, and everything pointed to her being deficient- but her blood work said otherwise. Then I discovered this article. http://www.livingwithout.com/issues/4_6/iron_works-1831-1.html It explained that Celiac's often need higher blood levels of iron than the general population. Eureka! I showed the article to our doctor, who then prescribed iron- and within days my daughter felt much better. (Her iron levels were at the lowest end of what is considered normal I later found out.) My point is that we need to be proactive in our health care- use the resources at your disposal. Empower yourself. But also realize that not everything on the web or in books will apply to you (some things can be harmful- like too much iron)- you and your doctor need to work as a team to discover what is right for you.

Sunday, April 3, 2011

Adapting to a GF Lifestyle

I think one of the biggest things that is overlooked when diagnosed with Celiac's is a sense of loss and anxiety. Being told by your doctor to stay gluten free for life and everything will be OK just seems to gloss over the significant change in lifestyle. It is not that your doctor has failed you-it is an overwhelming life change for many who are diagnosed later instead of as young children. My daughter was depressed shortly after her diagnosis. At 13, she was already an avid baker and could even make a variety of meals. She was a confident teen- and then suddenly she was scared of food, crying in the grocery store.
Food is something we often take for granted, though it is necessary for survival. But it is that basic necessity of food that I think rattles the new Celiac. It is also that more planning is required too that can be worrisome- where can I eat at the mall food court?...what can I make for lunch that will still be edible by noon?...how do I eat gf at someone else's house? And on top of all that, many gluten containing ingredient names have all the meaning of latin for most of us, and often requires extended grocery store visits in order to decipher labels. Overwhelming and Exhausting!
So how do you get through this transition?...
1) Go back to basics for a while. Meat, veggies, fruit, and eggs. Staying away from anything processed will give you the peace of mind in the initial days of adjustment. (Dairy is fine too- just be aware that things like ice cream and yogurt may be sources of gluten. So avoid initially if you are feeling anxious about reading labels.)
2) Look for a gluten free isle in your grocery store. Many grocery stores are stocking some gf products in various quantities. (Note: Just make sure to look for a gluten free label! I have seen countless times when organic products are thrown in with gluten free ones- and naturally one assumes since it is in the gf shelf that it must be gf too. So watch out!)
3) Check to see if there is a gluten free bakery in your area. This is fantastic for satisfying that craving for sweets, as well as solving the new issue of bread. I took my daughter immediately after her diagnosis to our local gf bakery that we are lucky to have here- it was a beacon of hope for her that she could live without feeling completely deprived of the foods she loved.
4) Join the Celiac association in your area. They will have information on food products that are safe, restaurant lists that are gf friendly, and many other tips.
5) Reach out to friends or colleagues that are Celiac's. They will be good sources of information, ranging from good tasting products, recipes, restaurants, etc. (Just don't let them convince you that cheating a little is OK!- some Celiac's do believe this, and it is not OK- you are damaging your small intestine by cheating!! More on this later...).
6) Don't be afraid to ask your doctor to refer you to a dietitian. The dietitian will have lots of information for you, and can help ease you through the initial stages of going gf.
7) Don't beat yourself up. What you are feeling is real, and not silly. Take small steps. You will get the hang of being gf, and it will become second nature. Find a friend to talk to, or post here and I or someone else will be happy to listen. :)

Saturday, April 2, 2011

Getting Started

When you are newly diagnosed as a Celiac, there are many questions and concerns to address. However, don't panic. Realize you will be on a learning curve for a while, and that you can't grasp it all in one day. My first bit of advice is to add this book to your library- Gluten Free Diet by Shelley Case. This book was recommended by the dietitian at our children's hospital when my daughter was diagnosed. It has more than enough information to get you started on your gluten free journey, but will become that go to book as you become more seasoned as well. IT IS A MUST HAVE! I have other gluten free diet books that I had bought at the same time, but this one is the one I refer to most often.

The Living Gluten Free Challenge

Living gluten free can be challenging. My family discovered this a little over two years ago when our teen daughter was diagnosed. It came as a complete shock since she had shown no obvious symptoms leading up to her dramatic and sudden onset of Celiac Disease. There was no known family history, and though I had heard of this condition, I essentially knew nothing. Once we had the diagnosis by biopsy, it was a steep learning curve for my daughter and our family. The task of feeding my daughter had suddenly seemed like a maze of inedible booby traps. But we got through it. And if you are a new Celiac you will adapt too. My hope with this blog is to help new Celiac's, as well as those who have been living gluten free for years, find resources to live better. You do not need to feel deprived any longer, or overwhelmed by "what can I eat?".